Monday, July 21, 2014

What Does A Reaction Look Like?

I refer to Makayla's food intolerences as "allergies" because it's the easiest way to explain to others that some foods may as well be deadly to Makayla, and to get across the seriousness of these intolerences.  In Makayla's case, we have NO diagnosis, as we have yet to find a doctor who believes us or will agree to preform a single test, but it's likely that she has something similar to this disorder, or an auto immune disease, or a mast cell disorder.



I'm sharing this so people understand that what we deal with is not a "high maintenance" child, or a some mild bloating and discomfort. She does not have Sensory Processing Disorder, or Autism, like some doctors have implied.  We have a child who becomes VERY ill from eating foods the rest of her family can and does eat on a regular basis, and foods that are absolutely unavoidable, such as corn.  Like the sister in this video, she regularly watches and sees her twin bother and family and friends eat foods she will likely never get to enjoy.  She also becomes very ill when she comes in contact with some foods and chemicals merely by smell or touch.

No comments:

Post a Comment